Showing posts with label Disability. Show all posts
Showing posts with label Disability. Show all posts

Monday, April 2, 2018

#SplitThisRock2018 Sessions: Disability & Neurodiversity

Split This Rock Poetry Festival: Poems of Provocation & Witness 2018 invites poets, writers, activists, and dreamers to Washington, DC for three days of poetry, community building, and creative transformation. The festival features readings, workshops, panel discussions, youth programming, parties, activism—opportunities to speak out for justice, build connection and community, and celebrate the many ways poetry can act as an agent for social change.

On-site registration is available every day during the festival at the festival hub: National Housing Center, 1201 15th Street, NW, Washington, DC 20005. A sliding scale of fees is available for full registration, beginning at $200. Student registration (with ID) is $75. One day passes are $85. Two-day passes are $170. 


Full festival schedule with session descriptions is available on the websiteThe Festival Mobile App is Live! Download the free app  for iOS and Android today for easy access to the schedule, session descriptions, presenter bios, and more! Just search your app store for Split This Rock. 

We are pleased to present a selection of sessions on themes related to disability and neurodiversity.

Wordplay: Poetry & Self-Advocacy for Youth with Autism (Workshop)
Presenter: Donnie Welch
Thursday, April 19, 1:30- 3 pm
Charles Sumner School Museum & Archives Conference Room

The Deaf Poets Society Reading (Reading)

Presenters: The Deaf Poets Society Editor Natalie Illum and readers Jay Besemer, Camisha Jones, Jill Khoury, Sari Krosinsky, Maria R. Palacios, Divya Persaud, and Naomi Thiers
Thursday, April 19, 3:30-5 pm
National Housing Center Room C

Hacking Norms & the Contested BodyMind (Panel)

Presenters: Kay Ulanday Barrett, Travis Chi Wing Lau, Jim Ferris, Molly McCully Brown, Susannah Nevison, Jillian Weise
Friday, April 20, 1:30-3 pm
Charles Sumner School Museum & Archives Conference Room

Sick/Disabled Realities: Striving Poetics of Ache, Interdependence & Survival (Panel)

Presenters: Kay Ulanday Barrett, Cyree Jarelle Johnson, Tyler Vile
Friday, April 20, 3:30-5 pm
American Association of University Women Room 1

"Against Death What Other Stay Than Love": Disabled Poets Read (Reading)

Presenters: Sandra Beasley, Meg Day, Constance Merritt, Khadijah Queen, Jillian Weise
Saturday, April 21, 9-10:30 am
National Housing Center Room C

Thursday, March 15, 2018

I L L N E S S: A Flash Memoir Prologue



Photo of poet Jeanann Verlee speaking into a microphone. She has long, reddish hair. There is a jukebox in the background.
Split This Rock presents this essay, below, as part of our participation in Where My Dreaming and My Loving Live: Poetry & the Body, this year's programming of the national Poetry Coalition. To read more about this initiative, supported in part by a grant from the Ford Foundation, visit the website of the Academy of American Poets.

Jeanann Verlee will read at two events with Split This Rock in Washington, DC, March 17 and 18. Details at Split This Rock's website.


by Jeanann Verlee

Since April of 2015, I have been ill. Quietly. Secretly. My body turning against itself, devouring. Ravaging and shrinking me. I have not had the courage to talk about it. It was six months before I even confessed to my spouse that I was sick. Nine months before I consulted a doctor. Shame is thicker than blood.

Let me go back. I was already ill. I’ve been ill much of my life. Though my illnesses are often regarded differently. I was misdiagnosed with depression as a teen. I was diagnosed with bipolar disorder in my mid-twenties. In my late thirties, I was also diagnosed with PTSD and anxiety. I have bipolar disorder. Hypomania. Depression. PTSD. Chronic anxiety. I am, and have been, ill.

For more than three-quarters of my life, I have been on and off countless cocktails of medication in treatment of my illnesses. My medicines, manias, depressions, and bouts of anxiety do not prohibit a full and productive life, but are a daily consideration. Sometimes, hourly. I flinch. I shut down. I grow fangs. Each, with exacting efficiency. 

Now this—my body seemingly turning itself inside-out—an apparently rare and incurable disease. One that is prohibitive of a full and productive life. Little is known about its progression, treatment is radically hit-and-miss, and its cause is unknown. Many doctors suspect this disease is caused by long-term use of SSRI’s (Selective Serotonin Reuptake Inhibitors, more commonly known as antidepressants). Oh, irony.

Still, there are other experts who have drawn links to long-term use of more benign drugs, such as Ibuprofen and other over-the-counter anti-inflammatories. Still others suggest genetic links. Many speculate that it may be an autoimmune disease, likely triggered by bacterial infection. 

The answer is that there is no answer. Science doesn’t know the cause because science hasn’t studied it. More research needs to be done, they say. Very rare, they say. No one is researching because, like many systems in the U.S., this system is broken. Doctors are dismissing or best-guessing their way through diagnoses and treatments while my body consumes itself.

Many psychiatrists believe that autoimmune disorders are linked to psychological trauma. Most psychiatrists believe there is no distinction between body and mind. The line is not merely blurred—there is no line. My body-mind is testament to this. My body is not separate from my mind. I am conscious of both because I have a mind, but together, as one, my illnesses affect all of me. Through my writing, I have worked for years to dispel the stigma of “mental” illness, trying to underscore that illness is illness. That my illnesses are simple. Incurable. Treatable. Nothing to fear. Something to understand. Human.

And so, it is possible—even likely—that the traumas I have survived fractured my psyche which led to treatment with psychiatric medicine which led to my body devouring itself. Or—equally likely—traumas fractured my psyche AND led my body to devour itself, regardless of medicine. More research needs to be done, they say.

I am sick. Chronically. My whole body-mind. Every day. I cannot predict what each morning will bring, but I know it will be some assortment of varied levels of pain, nausea, numbness, swelling, cramping, discomfort, exhaustion—AND—fear, sadness, rage, anxiety, hypervigilance, and shame.

* * *

After almost three years, five doctors, four clinics, and countless lab technicians, I was only officially diagnosed five weeks ago. Initially I was dismissed. Then misdiagnosed. Repeatedly. I refused to accept their amorphous answers. I tried again. And again. Each new clinic, each new set of doctors and staff, I was humiliated and mistreated and shamed. Dejected, I would give up for a time, then start over, refusing to be dismissed. I had to take my health into my own hands because medical professionals had simply thrown their hands in the air (one doctor did so quite literally).

I had to bully my way through. To be heard. To be seen. It took stamina. It took energy I often didn’t have. I spent countless nights sobbing, begging my body to stop hurting. Some nights I wanted to die. Many nights I thought I might be dying. Our system is broken. I had to do the work myself. Alone. I had to take the notes, keep the records. I had to repeatedly subject myself to the same tests, to endure the same humiliations, as each technician or doctor simply ticked off the same go-to list, Just to be sure.

Meanwhile, my body continues eating itself. Meanwhile, I am smaller and smaller and smaller. I have lost one quarter of my body mass, and I was already a fairly small person. My gums are receding, my hair is loosening from the root, my menstrual cycle is erratic, my skin is…you get the idea. Rattling changes. But this disease is not terminal and just knowing that has brought indescribable relief. Still, treatment has not improved my condition at all. I’m in a daily battle with my body-mind to avoid the host of ailments that come of malnutrition.

Unrelated—but not unrelated—during the throes of all this, a different doctor found a lump. Yes. In my left breast. Simultaneously, a painful cyst developed on my left ovary. It burst. It returned. It continues to grow. These other issues derailed my progress with new tests, sonograms, biopsies, prodding and groping in effort to determine any diagnosis and treatment for—well, everything else. My brain caught fire. Am I dying? After all this surviving? After fighting to stay? Why everything all at once? For now, we wait. To see if the lump changes. If the cysts change. I am being monitored. Just wait and see. Just wait.

Further to it all, though I am among those lucky enough to have medical insurance, mine is woefully insufficient. My annual deductible is so high, I never actually see the financial benefit of medical coverage. I have to pay out-of-pocket for everything (visits, tests, procedures, prescriptions) until I meet the improbable deductible, at which point coverage would begin and I would pay the more reasonable costs of tiered co-pays. 

However, I have never met that deductible. I pay out-of-pocket all year, and then suddenly it’s January and we start all over again. This out-of-pocket cost is in addition to the insurance fees deducted from my paycheck—in essence, I pay for the luxury of paying full-price for medical services. I am now in debt for medical expenses despite having medical insurance. Our system is broken.

It is through this demoralizing process that I have gained renewed respect for other individuals with chronic illnesses. While I’ve long imagined myself compassionate, I did not—could not—understand. I am beginning to understand. I have a long road ahead of me, but I have a road. I am here. I am sick. But I am here.

When Sarah Browning of Split This Rock queried if I had any ideas to share for the blog, I was at a loss. I don’t want to talk about any of this. I am not ready. I am not ready to write about this. I have not yet found a treatment that manages my pain and daily discomfort. I haven’t determined a reasonable method for financing medical costs. I have too much fear and there are too many unknowns to address the topic with any proficiency. But just last night, roused from sleep yet again, wrestling back tears in the desperate blur of 4 a.m., begging my body to stop hurting, I decided to give myself permission. To write—something, anything. This.

In the spirit of Split This Rock, I offer this prologue as introduction to some of the poems that have sustained me throughout this period—poems that yes, bear witness and provoke change. These poems address the numerous and complicated realities of the body-mind, from stigma to genetics to shame to resurrection to the immeasurable ways that we love—and are loved—through life, illness, survival, and loss. These writers are not only powerful artisans of language, but heroic livers of life. Writing with unflinching rigor and sight, challenging our many broken systems through voice and story. These are just some of the poems that have beckoned, shaped, healed, and held me—and I am immeasurably grateful.

·        Litany with Blood All Over by Danez Smith
·        Angel Nafis by Angel Nafis
·        my eyes in the time of apparition by Rachel McKibbens 
·        Post-Diagnosis by sam sax
·        Surgery Psalm by Liv Mammone
·        Let Me Handle My Business, Damn by Morgan Parker
·        As Around the Sun the Earth Knows She’s Revolving by Casey Rocheteau
·        Cleave by Ian Khadan
·        Someone Asked Me if My Hair Was Mine Today by Siaara Freeman
·        Ode to Lithium #75: Mind over Matter by Shira Erlichman

JEANANN VERLEE, a 2017 NEA Poetry Fellow, is the author of Said the Manic to the Muse (Write Bloody Publishing, 2015) and Racing Hummingbirds (2010), which was awarded a silver medal in the Independent Publisher Awards. Her third book, prey, was first runner-up for the Benjamin Saltman Poetry Award and will be published by Black Lawrence Press in 2018. She received the Third Coast Poetry Prize and the Sandy Crimmins National Prize, and her work appears in Adroit, BOAAT, Rattle, and BuzzFeed Reader, among others. 

Verlee has served as poetry editor for various publications, including Union Station Magazine and Winter Tangerine Review, in addition to a number of individual collections. The former director of Urbana Poetry Slam, where she served as writing and performance coach, Verlee performs and facilitates workshops at schools, theatres, libraries, bookstores, and dive bars across North America. She collects tattoos and kisses Rottweilers. She believes in you. Find her at jeanannverlee.com.

Thursday, September 22, 2016

Split This Rock Interviews Sheila Black, 10th Annual Poetry Contest Judge

Split This Rock's Program and Administrative Associate Tiana Trutna recently interviewed Sheila Black, judge for the 2017 Split This Rock Annual Poetry Contest. In the exchange, the two cover topics such as disability, intersectionality, what Sheila looks for in a poem, and joy. We invite you to get to know Sheila Black and be sure to send in your poems for the Annual Poetry Contest by November 1.


ABOUT SHEILA BLACK

Sheila Black is the author of House of BoneLove/Iraq (both CW Press), Wen Kroy (Dream Horse Press), and IronArdent, forthcoming from Educe Press in 2017. She is a co-editor with Jennifer Bartlett and Michael Northen of Beauty is a Verb: The New Poetry of Disability (Cinco Puntos Press), named a 2012 Notable Book for Adults by the American Library Association.  A 2012 Witter Bynner Fellow, selected by Philip Levine, she lives in San Antonio, Texas where she directs Gemini Ink, a literary arts center.

THE INTERVIEW

You co-edited the phenomenal Beauty is a Verb, The New Poetry of Disability with Jennifer Bartlett and Michael Northen. What surprised you the most about this anthology’s impact?

I think what surprised me most was the fact that BIAV (Beauty is a Verb, The New Poetry of Disability) even came into existence and then that it was noticed. I should explain—at the time Jen and I and Mike began this, we had nothing more than a glimmer of an idea behind us.  None of us had jobs in academia or many publishing contacts at that point. I had just left the university where I’d been an adjunct and then a contract instructor for many years, and had no job, and no clear sense of job direction. Jen was trying to eke out a living as a poet and adjunct instructor, and Mike had just retired from his work as educational coordinator for Inglis House, a facility that serves people with disabilities in Philadelphia. In a way, our lack of sustained employment was good, because we devoted ourselves entirely and wholeheartedly to putting together Beauty is a Verb. But to be honest I think we had very modest expectations of what would become of it.  We imagined years of sending the book to small presses—some sort of small quiet publication—and just the satisfaction we’d done good work.

What actually happened was a little more miraculous. On New Year’s Eve, when we’d been working on the project for about nine months, I went to a New Year’s Eve Party and happened to be seated next to Bobby Byrd, poet and publisher of Cinco Puntos Press.  He asked me what I’d been up to. I told him—and I must have sounded excited, because he asked to see the manuscript. I sent it to him New Year’s Day. Two days later he called me and said Cinco Puntos wanted to publish it. I suppose I am telling this story for all the writers and thinkers out there with a project like ours in their minds—a project born out of sheer faith, love. An amateur project, if you will. I think BIAV taught me anyway that if you really go with what you believe, and you do your very best to make the work strong, bigger things can happen than you expect. 

What makes you proud about the book’s accomplishments?

I am proud that Beauty is a Verb  helped move non-disability communities away from a purely tragic conception  of disability, or disability as simply a condition of being “less than.” I’m glad we were able to trace through the wonderful writers who contributed some of ways in which disability is a socially constructed phenomenon and how that construction occurs.  And—I have to add—it still shocks me how dominant the idea of being “less than”: is—not only for people with disabilities, but for communities of color, communities of immigrants, LGTBQIA communities. We know it is wrong, but even so that idea persists and gets reproduced. I’m proud that BIAV is one of the many books of poetry, cultural artifacts we are seeing now that are exposing that idea for the fraudulent construct it is.

You’ve said in past interviews that while editing the anthology, Beauty is a Verb, The New Poetry of Disability your ideas about disability expanded. Could you share a bit about that?

By expanded my ideas of disability I think I meant I did not fully appreciate the creative aspects of most disability experiences—by that I mean the multiple ways in which alternative embodiment or what is often called “disordered thinking” often lead to experiences and insights that simply wouldn’t be available otherwise. To give some specifics—the way Larry Eigner describes space from the perspective  of one who does not move freely within it; what ASL brings to the language of a poet like John Lee Clark—a kind of filmic quality or way of charting action; or how C.S. Giscombe conceives of transportation systems or “settling land” in a completely unique way that arises both out of his experience as an African-American man and a person with a disability; what Norma Coles’ work post-stroke tell us about the relationship between the word and what lies before the word. I became more appreciative of everyone’s—and I really do mean everyone’s—possession of a unique set of experiential information that can add to the body of all our knowledge; I think empathy, when it is really empathy, is less sympathy or pity than a bare recognition of that fact—realizing that expanded my sense of value and made me question the hierarchies, I had always lived within, which in most cases were historically established. What was it Elizabeth Bishop said in “To the Fishouses?”—“our knowledge is historical, flowing and flown.” When I was editing Beauty is a Verb I thought a lot about history—both as resource and burden. 

You’re helping to launch a new literary organization for poets with disabilities called Zoeglassia. Can you tell us more about the organization and its aspirations?

Zoeglossia is an idea still, but soon to be implemented. I am very excited about it. The founders, Jennifer Bartlett, Connie Voisine and I were very indebted to forbearers like Canto Mundo, Kundiman, Cave Canem, and Lambda Literary—organizations that pioneered the idea of creating open spaces and supportive communities for African American, Asian-American, Latino, and LGTB poets. We were talking about these organizations, and how important they had been, and started to think that writers with disabilities really needed a similar space. In fact, this need seemed particularly urgent to us because people with disabilities are often isolated—in pure economic terms they also often don’t have significant resources to travel, to engage in mainstream writers conferences, educational opportunities, etc. 
The goal of Zoeglossia is to create an annual retreat that would involve professional development of attendees by prominent, established writers with disabilities. This would include writing workshops, lectures, panel discussions and literary readings. The emerging writers will be selected competitively based on their writing and their expenses at the retreat will be covered in order to facilitate participation. Writers will attend the retreat three times over a five-year period to attain the credential of “fellow.” While people with disabilities are among the largest minority group in America, writers with disabilities are vastly underrepresented in academia in general, and specifically in publishing, creative writing programs and the organizations that govern the field. We look to Zoeglossia to be an advocate for more representation of people with disabilities, but also a space for nurturing writers with disabilities to produce their own best works—a shared creative community with all that this implies.
With Vilissa Thompson starting the #DisabilityTooWhite conversation on Twitter, there’s been some critique lately about disability being portrayed as overwhelmingly white in the media and disability community. How do you negotiate your whiteness as a disabled person and what are your thoughts on intersectionality?

Vilissa Thompson is telling an important truth. I am not on Twitter—I am such a technology Luddite—so I missed this when it first happened, but she is so right. The media does portray disability as overwhelmingly white. It is also true that within disability communities we have a long way to go in terms of being fully multi-cultural in our organizations and movements. The sad irony is that this is exactly not the experience of disability itself. One of the powers of disability—if I can use such a word—is the way it cuts across differences of race, class, and nation.

I was stopped a little by the second part of this question…I tried to figure out why I was having a hard time answering, and I realized it was the word “negotiate,” which I perhaps wrongly tend to associate with business dealings or work conflicts. I don’t know that my whiteness is negotiable. What I mean by that is that it is the weight of history…To be white in this country is to have a history of enforced privilege—to have been part of a story that is terrible and raw and involves genocide, and slavery, and colonization, and a pattern of oppression that has not yet ended.  I may long to disavow that personally, but I really can’t, and I think—if I could be so bold—that to “negotiate” it feels wrong to me.  I am not sure what to do about it, but it feels more like something I just have to sit with, live with, mourn and try to address—but not in a way that is controlling, because control, or the control implied for me by a word like negotiation, feels all wrong for the scale of the thing. That historical weight feels rather like something I should hold in the darkest silence of myself, try to breathe through, and try to really contemplate hard. I guess I am trying to say my personal negotiation feels a lot less important to me than being vulnerable to it. 

Intersectionality seems to me the way we have to move to move forward, particularly as the tools, especially the psychological modes of oppression, often function in remarkably similar ways—no matter what group they are used against…I hope that the movement toward greater justice for people with disabilities, people of color, LGTB people leads to a different sense of social order, a different way to understand and value our communities. A movement, in other words, that creates an order that is not quite so much like our current one, which is a little more like a pyramid scheme than I would like—a few lucky souls at the top and everyone else struggling to rise. I don’t think it has to be that way, but the alternatives are not easily arrived at. I think intersectionality, if considered as a dialogue between, could be a real space for forging something new. I try to push that in my work as an activist. In my writing, to be honest, I hold myself much more tightly—I think the real work I do is simply to try to tell the truth of my consciousness in as openhearted, vulnerable and ruthless way I can.

A successful poet in your own right, can you tell us more about your writing process?

Zadie Smith, who—as well as being a wonderful novelist—writes for me are what are perhaps some of the best personal and critical essays of our times, said something about writing or being a writer that I loved. “Tell the truth through whichever veil comes to hand — but tell it. Resign yourself to the lifelong sadness that comes from never being satisfied.” That was from a list she made—a great list—of advice to writers. 
I think that is pretty much my writing process. I try to tell the truth. I resign myself to being disappointed, because of course to convey the truth you can’t simply tell it, you have to eke it out of yourself through all kinds of indirection and necessary discretion, tempered, I think, by a willingness to be ruthless, and mostly with yourself, which involves a lot of failure—moments when you don’t get it right or just aren’t up to the task. 
I still find the production of a poem mysterious. I draft quickly and write a lot of drafts very quickly, but I revise very slowly. I have friends who are the other way around, but whichever way you choose, I think you have to work hard in the end. I also read a lot because nothing inspires me to want to write more than someone else’s beautiful poem. Yet that only helps to some degree,  because to be good—though you never entirely know if you are good—you have to be willing to listen and nurture that small stubborn self that knows something—what? That’s the hard part, pinning down that “what” that no one else knows.
As Split This Rock’s 10th Annual Poetry Contest Judge, tell us what you look for in a poem.

What I look for in a poem?  I have no idea until I find it. I like to be surprised. I like writers who weigh words in their own unique way. I think the work of a poet happens in much the same way as pearls are said to be made—something irritates or upsets you, or you just don’t understand it, and you spend a long time playing words, language until you find a way to get at that thing, maybe in part by suppressing it or not directly stating it, or only expressing it, in a way that also transforms it into an experience that contains something ineffable, a sense of the mystery of being. I like works that reframe ideas or experiences for me in ways that make me reconsider or renter that experience. I like poets who are vulnerable and also in complete authority. I like to hear a voice, a particular voice in a poem. Maybe that’s what I like most of all, the sense of a voice speaking as if through me in a way I have never heard something spoken before.

Outside of the world of poetry, what brings you joy?

I think writing a good poem—rare as a butterfly on your hand—well, that is still one of my great joys. My others—in no particular order:

  • I like to go sit in a dark bar with a good friend and one delicious cocktail
  • I like to cook. I read once that Hanif Kureishi (the author of “My Beautiful Laundrette”) complained in his divorce from his second or third wife that she read cookbooks in bed, and I thought, “But that’s me, I read cookbooks in bed!” Reading cookbooks in bed makes me happy.
  • I like to go to movies alone in the middle of the afternoon.
  • I like to read.
  • I like to hang out in the kitchen with my children.
  • I like to go to museums and look at one painting for half an hour and then leave.
  • I like to travel almost anywhere.  I think most, if not all, of the happiest times of my life have been when I was on the road or in a motel or hotel room or a borrowed house in a city I didn’t know.
All these things do give me joy—even if it is sometimes a slightly melancholic joy. 

What would you like to be known for and how would you like to be described?

I am fifty-five, and I am feeling that pressure of age—a pressure to know who I am and what I’m about, which I don’t entirely, except, maybe I would like to be more fun as I go on. I’d love to be described one day as  a wild and reckless old woman, who people visit just because she is good fun—someone capable of joy. That and a good friend, a decent mother, an activist, a poet who tries,

All things considered that is probably more than enough.

Monday, February 3, 2014

Split This Rock Responds to Criticism of Inaccessibility


Stephen Kuusisto has reason to be frustrated with Split This Rock’s website not being accessible to people with disabilities. He pointed out two problems: PDFs of the schedule of the upcoming Split This Rock Poetry Festival are not ADA compliant and emails we send out frequently lack the descriptive tags that should be attached to embedded images.

We didn’t know that PDFs are not accessible, but ignorance is no excuse. When Stephen wrote to me, I immediately wrote back to apologize and tell him we’d rectify the situation. Not labeling images, I’m afraid, is the result of all of us – a tiny staff at Split This Rock – feeling stretched to the limit and cutting corners. I was wrong not to train new colleagues and not to give all of us continual reminders, so that we wouldn’t make these errors.

We are still learning. We sometimes miss things. But when those errors and omissions are pointed out, we are grateful: it offers us the opportunity to improve how we practice what we preach.  
  
I would like to take a minute to share the ways we have tried to make Split This Rock a place that is welcoming to people with disabilities. We were lucky to have the poet and writer Kathi Wolfe on our first festival coordinating committee back in 2008. Kathi is legally blind. A writer and poet, she urged us to include a disability rights and cultural perspective.

We designed our website to be ADA compliant, venues for Split This Rock events are wheelchair accessible, and we make large-print materials available at our festivals. Once we were able to provide ASL interpretation for a festival featured reading and we will strive to do so again this year. I know this is by no means a perfect record, but we are trying.

We have also welcomed and accepted proposals for panels and themed group readings at Split This Rock Poetry Festival on disability poetics, giving festival participants an opportunity to learn from poets and activists about the disability rights movement and about disability culture. We’ve presented poets with disabilities as festival features, including Stephen at our first in 2008 and Sheila Black at the upcoming festival in March.

Accessibility is one of our core values: “Accessibility – Split This Rock values individuals of all abilities and strives to make its programs and materials accessible to all.” We include people with disabilities in the language we use to describe the stunning diversity of American poetry to which we are dedicated.

On this occasion, though, we screwed up. Given the lack of access that people with disabilities face every day, I don’t blame Stephen for being angry that an organization that claims to be dedicated to inclusion excluded him. He is right that we should have built into our schedule – into the daily culture of the organization – periodic check-ups of the website for ADA compliance.

This episode challenges us to rededicate ourselves to accessibility. We are in the midst of a website redesign, for example, which we had hoped to have launched by now. The site will be ADA compliant and we’ll all be able to update it, a huge improvement for the staff, as, at the moment, only one very part-time member of the staff can make changes – very slowly – to the current site. Unfortunately the launch has been delayed, but we are eagerly awaiting the new site and its greater functionality.

I am sorry that Stephen will not be joining us for this year’s Split This Rock Poetry Festival. We will miss his wisdom and his powerful voice. I hope he will consider being part of future festivals. And we welcome his further engagement – and that of other people with disabilities and advocates for disability rights – as we continue to learn and to build the kind of organization we wish Split This Rock to be, one that is welcoming and accessible to all.

Sarah Browning
Executive Director
Split This Rock